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About the Foundation

Our Mission

Beyond Batten Disease Foundation was established to eradicate juvenile Batten disease by raising awareness and funds to accelerate research for a treatment or cure.

About Funding

BBDF is dedicated to collaboratively developing, funding, and managing fundamental, preclinical, IND-enabling, translational and clinical research to improve the lives of children and young adults with CLN3 disease. Since 2008, BBDF has been the largest funder of juvenile Batten (CLN3) disease research, ranging from basic discovery research to translation into therapies. To inform our research initiatives, BBDF gathers information from one-on-one meetings, broad group discussions, scientific peer-reviewed publications, conference proceedings, drug pipelines, and tailored merit reviews into the foundation’s decision-making processes. Input comes from across the Research and Development spectrum including academia, biotechnology, the pharmaceutical sector, and clinicians, caregivers, and patients.

Our research funding decisions are based on these research objectives:

1) Supporting basic research to discover new mechanisms of disease, targets, and treatments

2) Supporting projects which facilitate execution of clinical trials such as expanding patient registries

3) Identifying biomarkers and other innovative clinical endpoints

4) Supporting projects that de-risks pharmaceutical investments in Batten disease

Foundation-Directed Research

The largest portion of the foundation’s portfolio is directed research. The foundation fills gaps in juvenile Batten disease research by funding high-impact projects and breakthrough technologies that will lead to disease mitigation and cure.

BBDF’s Principal Scientist regularly interacts with leaders in research and development across the entire therapeutic pipeline for Batten, as well as for adult forms of neurodegeneration (e.g., Alzheimer’s and Parkinson’s disease), and other related rare genetic diseases. To supplement this dialogue, BBDF creates specialty boards and steering committees to lead the development of its projects. A specialty board typically comprises ~200 years of combined experience specific to the proposed activity.

Investor-Initiated Research (Applying for a research grant)

In addition to directed research, BBDF accepts and awards research proposals. Because great ideas do not follow a schedule, we do this on a rolling submission basis. All budgets are carefully reviewed along with the proposed body of work. Applicants may be asked to revise their budgets and/or allow BBDF to share a summary of the proposal with other funders for the purpose of gathering additional support. Sometimes, the foundation will offer the applicant additional funding to incorporate additional expertise or methods into his or her plan.

Our Mission

The Baughman Family Foundation aims to make an impact on our local communities by supporting organizations nominated by family members. The goal of the foundation is twofold: to make a meaningful impact on our selected charitable organizations and to encourage family members to become active in charitable giving.

Submission Guidelines

When submitting an application, please keep the following guidelines in mind:

The focus of the Baughman Family Foundation is on supporting local charities where the Foundation can make a direct, tangible impact on causes that matter to our family.

About

What is FOXG1 Syndrome?

FOXG1 syndrome is a rare genetic neurodevelopmental disorder caused by a mutation in the FOXG1 gene. FOXG1 gene is one of the first and most important genes for early brain development and when impaired, causes developmental disabilities as well as medical complexities, including epilepsy.

Every child born with FOXG1 syndrome is unique as FOXG1 manifests as a spectrum where symptoms and severity vary between individuals. Our patient data shows characteristics of children with FOXG1 syndrome include: non-speaking, non-ambulatory, experience seizures, feeding problems, cortical vision impairment, movement disorders, and developmental delays. Less-severely-affected FOXG1 children often present with (ASD) Autism Spectrum Disorder as FOXG1 is an autism related gene. FOXG1 syndrome is found equally among both females and males and is geographically more prevalent where diagnostic testing is more advanced. 

Our Story & Mission

When our children were diagnosed with FOXG1 syndrome, we were told there was nothing we could do. No treatments, no concerted research underway, no roadmap. Just a devastating diagnosis for a disorder few had ever heard of.

But we refused to accept that. 

Research Assets & Grants

FOXG1 Scientific Research Project Grants

The FOXG1 Research Foundation is providing grants to scientists to deepen the understanding of the biology of FOXG1 with the goal of identifying innovative therapeutic strategies and finding a cure.

For the next few years, these are the strategic focus areas:

• Experiments designed to understand when, where, and levels of FOXG1 needed for normal brain development in mice
• Experiments designed to understand the biophysical properties of FOXG1 mutations
• Experiments designed to gain insights into the molecular and cell biological pathways regulated by FOXG1  

Retina Research Foundation

Across the nation, there were only a handful of voluntary groups with the will and the means to tackle retinal disdorders. Retina Research Foundation, established in 1969, was one of those organizations. By the 1980s, RRF had become a voice for retina research in an effort to reduce the incidence of retinal disease, which was fast becoming the leading cause of blindness in developing countries.

Undaunted, the Foundation steadily raised funds each year for vision scientists who were nationally recognized for their work in retina research. Government funding for eye research increased dramatically, and the field of retina research matured. As this body of knowledge grew, RRF programs were expanded to include major awards that recognize established retina scientists and contribute to their ongoing research. The Foundation also developed scientific exchange programs to disseminate knowledge of the dramatic advances that were being made in the laboratory.

RRF Pilot Study Grants

The mission of the Retina Research Foundation is to reduce retinal blindness worldwide by funding programs in research and education. As a public charity, RRF raises funds from the private sector and the investment of its endowment funds.

RRF is currently welcoming pilot study grant applications for the 2027 grant period. Each grant application must be signed by the principal investigator and either their Department Chair or Dean of Research.

Sports Matter Mission

We believe that sports change lives. In addition to physical and mental health benefits, sports have the power to change our perspectives, our character and our communities for the better. This core belief has guided DICK’S Sporting Goods and The DICK’S Sporting Goods Foundation since the beginning – but not everyone has the same access to play. Through grants and other support, The DICK’S Foundation Sports Matter Program helps under-resourced 501c3 organizations, schools and community teams across all 50 states provide opportunities for youth to play sports.

Why It Counts

• Low-Income Kids Play at Half the Rate of Wealthier Peers
• Participation in Team Sports has Declined 4% Since 2017
• One in Three Kids Can't Participate in the Sports They Want 
• Number of Kids Playing Multiple Sports Has Declined

Sports Matter Program

We Believe Every Kid Deserves a Chance to Play

The Sports Matter Program focuses on supporting youth sports in under-resourced communities.

All grant applications are made subject to review of the applying organization’s reputation and activities, and its agreement to comply with applicable terms and conditions. 

The Emergency Citrus Disease Research and Extension Pre-Applications program, funded by the USDA's National Institute of Food and Agriculture, seeks innovative proposals to combat Huanglongbing (HLB) and its associated diseases. This initiative aims to ensure sustainable citrus production in the U.S. through collaborative strategies that leverage existing knowledge. Funded projects will focus on developing actionable solutions for growers to effectively manage and prevent HLB infections, ensuring the health of citrus crops in the near future.

The Tribal Colleges Extension Program Special Emphasis (TCEP-SE) aims to enhance community engagement through pilot projects at 1994 Institutions, targeting issues like agricultural productivity, food systems, and public health. This program is open to a wide range of Tribal colleges and universities, promoting workforce development and youth involvement in agriculture. By addressing local needs, TCEP-SE fosters community vitality and prepares the next generation of Tribal agriculture leaders.

The ROSES 2025: A.17 Hydrosphere program by NASA aims to enhance our understanding of Earth's water systems, focusing on Ocean Physics, Precipitation Science, and Terrestrial Hydrology. This initiative invites proposals targeting specific priorities within these disciplines to advance knowledge on water distribution and movement across the Earth. Proposals will undergo rigorous peer review to ensure transparency and scientific integrity, aligning with NASA's commitment to reproducible and collaborative research.

About Marion Community Foundation

Since 1998, area residents have been turning to Marion Community Foundation to make their philanthropic giving as effective as possible. We are a public charity serving thousands of people who share a common concern … improving the quality of life in Marion County.

Individuals, families, businesses and organizations create permanent charitable funds that help our community meet its needs and challenges. The Foundation invests and administers these funds.

Douglas & Elaine Waring Memorial Scholarship

The Douglas & Elaine Waring Memorial Scholarship Fund honors engineer Doug Waring and his wife of 49 years, Elaine. 

Created in 2002, the Waring scholarship supports the education of any Marion County high school student who scored in the upper 50th percentile of the ACT, SAT, or other national standardized test.

The USDA Forest Service's Invasive Species Program funding opportunity invites proposals aimed at enhancing invasive species prevention. By leveraging existing research and knowledge, projects can create actionable solutions to protect American agriculture. This initiative seeks to connect scientific insights with practical regulatory improvements, thereby reducing the introduction and establishment of new invasive pests. Previous research, including horizon scanning and monitoring sentinel trees, serves as a foundation for developing effective strategies.

The Innovative Traffic Safety Enforcement (ITSE) Grant Program aims to develop effective traffic safety enforcement initiatives to reduce motor vehicle crashes caused by risky driving behaviors. It encompasses three evaluation phases, with deadlines from September 2026 to September 2027. This program seeks to fund scalable and repeatable projects that align with the Department of Transportation's mission and executive priorities, enhancing safety across the United States.

The Bill Monroe Memorial Scholarship, managed by the Brown County Community Foundation, offers financial support to graduates of Brown County High School pursuing a full-time baccalaureate degree in music or a related field. This scholarship is open to current and previous graduates, including those participating in Bluegrass music mentoring programs. The foundation has a strong focus on education and has facilitated numerous scholarships, enhancing opportunities for local students since its establishment.

The DHQP Global NOFO aims to enhance the CDC's mission against antimicrobial resistance (AR) by integrating non-research implementation with focused research. This initiative addresses urgent global threats posed by various pathogens and healthcare-associated infections (HAIs). By leveraging existing CDC networks, the NOFO seeks to improve detection, surveillance, and infection control measures, ultimately reducing illness and mortality while protecting healthcare workers and patients, especially in low and middle-income countries.

The FY 2027 State and Regional Primary Care Association (PCA) Cooperative Agreements aim to enhance the technical assistance provided to Health Center Program award recipients and look-alikes. This initiative focuses on improving access to preventive and primary health care, managing chronic diseases, and ensuring a capable health center workforce. By implementing value-based care strategies and leveraging data for operational improvements, the program seeks to support the health of vulnerable communities effectively.

The BETA Scholarship Fund, managed by the Brown County Community Foundation, provides financial support to residents of Brown County, Indiana, under the age of 25. This scholarship is designed for individuals pursuing education or certification at vocational, trade, or skills schools. Since its inception, the Foundation has focused on enhancing educational opportunities for local youth, ensuring that financial barriers do not hinder their academic aspirations.

The Brown County Citizens’ Scholarship, managed by the Brown County Community Foundation, supports graduates of Brown County High School and current residents by providing scholarship grants. Since its establishment in 1993, the Foundation has prioritized education and has awarded numerous scholarships, including full-tuition opportunities through The Lilly Endowment Inc. Eligible applicants include high school graduates and GED recipients, with preference given to those in the upper third of their class and single parents seeking further education.

About Marion Community Foundation

Since 1998, area residents have been turning to Marion Community Foundation to make their philanthropic giving as effective as possible. We are a public charity serving thousands of people who share a common concern … improving the quality of life in Marion County.

Individuals, families, businesses and organizations create permanent charitable funds that help our community meet its needs and challenges. The Foundation invests and administers these funds.

Gary W. Troll Memorial Scholarship

The Gary W. Troll Memorial Scholarship Fund, created in 2002, supports higher education for students who reside in the service area of the Northwest Ohio Educational Service Center, where Gary Troll (1947-2002) served as superintendent.

Recipients of the Troll Scholarship may come from any of the high schools in the Northwest Ohio Educational Service Center’s district, including Marion County—Elgin, Pleasant, Ridgedale, and River Valley; Seneca County—Bettsville, Hopewell-Louden, New Riegel, Old Fort, and Seneca East; and, Wyandot County—Carey, Mohawk, and Upper Sandusky. They will be seniors with a GPA of 2.75 or above.

The Brown County Farm Bureau, Inc. Scholarship aims to provide one-year tuition assistance to two residents of Brown County pursuing a four-year academic degree or a multi-year vocational degree at a trade school or community college. Eligible applicants must be graduates of an accredited high school or G.E.D. program and be members of the Brown County Farm Bureau. The scholarship emphasizes community service, GPA, and personal circumstances.

About Marion Community Foundation

Since 1998, area residents have been turning to Marion Community Foundation to make their philanthropic giving as effective as possible. We are a public charity serving thousands of people who share a common concern … improving the quality of life in Marion County.

Individuals, families, businesses and organizations create permanent charitable funds that help our community meet its needs and challenges. The Foundation invests and administers these funds.

Jeannette Turner Memorial Scholarship

Dorothy Ellen Thew, a lifelong member of the Marion community, left, as part of her legacy, a gift to create three scholarship funds at Marion Community Foundation. A noteworthy person in her own right, Dorothy designated that three scholarship funds be created from her estate to honor beloved members of her family. The Jeannette Turner Memorial Scholarship, created in 2010, honors her aunt’s work as a teacher at the former Silver Street Elementary School.

The Cindy Colglazier Scholarship, managed by the Brown County Community Foundation, aims to support students pursuing education in healthcare fields at accredited institutions. This scholarship is available to residents of Bartholomew, Brown, and Monroe Counties, including high school graduates, current college students, and G.E.D. graduates. The Foundation has a long-standing commitment to education and provides essential funding to help students achieve their academic goals.

The Dorothy Stewart Memorial Scholarship, managed by the Brown County Community Foundation, aims to foster interest in public and environmental affairs. It provides financial support to graduates of Brown County High School or G.E.D. recipients who demonstrate exceptional citizenship and community involvement. Eligible candidates must pursue a degree in relevant fields, ensuring that the scholarship contributes to the development of future leaders in these critical areas.

About Marion Community Foundation

Since 1998, area residents have been turning to Marion Community Foundation to make their philanthropic giving as effective as possible. We are a public charity serving thousands of people who share a common concern … improving the quality of life in Marion County.

Individuals, families, businesses and organizations create permanent charitable funds that help our community meet its needs and challenges. The Foundation invests and administers these funds.

John & Jackie Watkins Scholarship

This scholarship recognizes the long history of Marion County as an agricultural area and the importance of farming in our community. John and Jackie Watkins both grew up in Delaware County and attended Radnor schools. They knew the value of education and its lifelong benefits.

Following Jackie’s passing in 1998, the family established the John & Jackie Watkins Scholarship Fund in her memory to assist the youth of Marion County to attend college—specifically to study agriculture. The Watkins Fund makes awards to graduating seniors from any high school in Marion County who are pursuing an education in agriculture, with special consideration given to those who have participated in FFA.

The Harry D. Poling Scholarship, managed by the Brown County Community Foundation, supports current and former 4-H members pursuing higher education or vocational training. Established to assist students from Brown County, this scholarship prioritizes those seeking CDL or vocational training, emphasizing financial need. Since 1993, the Foundation has focused on educational initiatives, providing numerous scholarships to local graduates and working closely with The Lilly Endowment Inc. for enhanced educational opportunities.

The Faye Lynn Deckard Memorial Scholarship Fund, managed by the Brown County Community Foundation, aims to provide scholarships for students accepted into accredited two- or four-year institutions. This fund supports residents of Brown County pursuing degrees in early childhood education, ensuring that financial barriers do not hinder their educational aspirations. Since its inception, the foundation has been dedicated to enhancing educational opportunities for local students, reinforcing its commitment to community development and academic achievement.

About Marion Community Foundation

Since 1998, area residents have been turning to Marion Community Foundation to make their philanthropic giving as effective as possible. We are a public charity serving thousands of people who share a common concern … improving the quality of life in Marion County.

Individuals, families, businesses and organizations create permanent charitable funds that help our community meet its needs and challenges. The Foundation invests and administers these funds.

Marion Women’s Business Council Scholarship

The Marion Women’s Business Council created this scholarship fund in 2017 from member contributions to support future women in business. 

The Women’s Business Council Scholarship Fund annually awards a scholarship to a female student from a Marion County high school pursuing studies in business, finance, economics, marketing, management, advertising, accounting, human resources, or entrepreneurship.

The RNomics Molecular Standards initiative, supported by the NIH Common Fund, aims to enhance research on RNA molecules by developing standardized references. This program will facilitate the creation, testing, and distribution of RNA molecular reference standards, which are crucial for ensuring consistency and reliability in RNA research. By providing guidance on best practices and planning for long-term availability, RNomics will help advance technologies that analyze RNA sequences and functions, ultimately improving health and disease understanding.

Gilead Sciences

At Gilead, we are relentlessly committed to advancing transformative therapies for the most serious diseases, delivering an exponentially positive impact on health.

For more than three decades, we have combined scientific rigor with a deep sense of purpose to improve health outcomes and reimagine care. Our work spans more than 35 countries with a focus on three therapeutic areas: virology, oncology, and inflammation, where unmet medical needs remain greatest.

From individual patients to whole populations, we’re committed to delivering healthier futures for people and communities worldwide.

Our Mission: To discover, develop and deliver innovative therapeutics for people with life-threatening diseases.

HIV Prevention NOVA 2026

Program Description

Gilead Sciences invites research proposals that advance the evidence base for innovative and scalable models of delivery for long-acting (LA) HIV pre-exposure prophylaxis (PrEP) in the United States.

This Topic of Interest (TOI) is focused on care delivery models implemented in non-traditional settings, defined as clinical and non-clinical environments where PrEP services are not routinely provided. Emphasis is placed on approaches that reflect real-life practice and address gaps in current PrEP delivery infrastructure.

Persistent inequities in PrEP uptake in the U.S. suggest that expanding availability within traditional clinical settings alone is unlikely to reach all populations with unmet PrEP need.1,2 Rigorous implementation studies in non-traditional settings where PrEP services are not routinely provided are needed to evaluate whether these models can reduce access barriers and improve equitable reach among individuals who may benefit from PrEP.2,3,4

The goal of this TOI is to generate practical, decision-relevant evidence that informs how LA PrEP can be implemented, scaled, and sustained in real-life U.S. settings.