Best Grants for Rare Diseases in Utah

The Mike & Sofia Segal Foundation Grant provides vital funding to nonprofit organizations focused on intellectual freedom, medical research for rare diseases, Jewish heritage preservation, elder care, and climate change initiatives. By supporting innovative projects that align with their mission, the foundation aims to uplift communities and foster meaningful societal contributions. Organizations must be 501c-3 compliant and demonstrate a clear plan for engagement with beneficiaries and measurable objectives to be eligible for funding.

The Patient-Centered Outcomes Research Institute (PCORI) will announce funding for patient-centered comparative clinical effectiveness research (CER) studies focusing on rare diseases. This initiative encourages collaboration and aims to fill critical research gaps affecting approximately 30 million Americans with rare diseases. Applications can request up to $12 million over five years, including coverage for patient care costs. This funding opportunity is set to open on August 12, 2025, with a focus on addressing pressing patient-centered CER questions.

The PCORI Engagement Award: Capacity Building aims to enhance the capacity of patients and stakeholders in patient-centered comparative clinical effectiveness research (CER). Projects can last up to two years with funding up to $300,000. Successful proposals will demonstrate understanding of CER, community engagement, and commitment from stakeholders. The initiative encourages the use of existing tools and resources to foster patient involvement in research processes, aligning with national health priorities and addressing pressing healthcare issues.